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NATIONAL INSTITUTE OF HEALTH (NIH)
The NIH is a part of the U.S. Department of Health and Human Services which aims to improve human health and reduce illness through scientific research. The NIH provides useful resources about the causes, symptoms, various types of and treatments for Lewy Body Dementia. For more information click here. For information on Parkinson’s Disease please click here.
WORLD HEALTH ORGANISATION
The WHO is an agency under the United Nations that is concerned with international public health matters. The WHO provides fact sheets on many diseases and conditions, including dementia, which can be found here
THE LEWY BODY SOCIETY
The Lewy Body Society is a UK based organisation, whose goal is to raise awareness about Lewy Body Dementia, support patients and to fund essential research into the causes of and potential treatments for this disease.Find out more here. This organisation also provides a variety of educational leaflets and guides which can be downloaded free of cost here.
Lewy Body Dementia Association
The Lewy Body Dementia Association, is a US based foundation that aims to raise awareness about Lewy Body Dementia and to support families and caregivers of those who are affected by this disease, who can find information about the symptoms, diagnosis and treatment of Lewy Body here.
For Lewy Body Dementia research please click here.
The Lewy Body Resource Centre
The Lewy Body Resource Centre, is a US based group that aims to educate and support families of those with Lewy Body Dementia. This organisation is primarily focused on providing information about the disease, treatments and how to improve the quality of life of patients.You can find their current research here.
European Dementia With Lewy Bodies Consortium (E-DLB Consortium)
The E-DLB Consortium is a network of expert research centres which are collecting longitudinal and clinical biomarker data, through collaborative imaging, EEG and biological sampling. Published results from these projects can be found here.
Lewy Body Dementia Canada
LBDC was created as a reliable source of information about Lewy Body Dementia that is accessible to the public. The goal of this resource is to provide hope to caregivers, families and patients through knowledge about the disease. An abundance of useful articles have been written specifically for the website which offer tips for dealing with Lewy Body Disease on a daily basis. You can access these articles here.
American Parkinson’s Disease Association (APDA)
The APDA is dedicated to fighting PD and has invested nearly $55 million dollars in scientific research since the organisation was founded in 1961. This funding goes towards the maintenance of eight centres for advanced research as well as research and fellowship grants in the field of PD causes and treatments. You can learn more about research that is funded by the APDA here.
Parkinson’s Association of Ireland
The Parkinson’s Association of Ireland was set up primarily to offer assistance and support to PD patients and their families as well as clinicians as they battle this disease. Their website provides information for patients, their families and carers about PD, symptoms, and treatments. For more information click here.
Michael J. Fox Foundation (MJFF)
The MJFF is a research driven organisation that has funded over $1 billion dollars’ worth of scientific studies of the underlying causes and new treatments for Parkinson’s disease (PD) since the year 2000. Details on past and present studies funded by the MJFF can be found here
Parkinson’s UK is a charity that promotes PD research in the hope of finding a cure and supports those affected by this disease to improve the quality of life of patients and their loved ones. Their website has information about what PD is, the symptoms, treatments and where you can get support. For more information click here. Current research can be found here.
European Parkinson’s Disease Association (EPDA)
Parkinson’s Disease Foundation
The Parkinson’s Disease Foundation aims to improve the lives of those affected by PD by enhancing the support that they receive and advancing scientific research towards a cure. The Parkinson’s Foundation has invested over $400 million in PD research and clinical trials, which you can read about along with updates on projects currently funded by the foundation here.
The Alzheimer’s association is a voluntary organisation that envisions a world without Alzheimer’s disease and other types of dementia. They provide a brief background on Lewy Body Dementia as wells as details about symptoms, diagnosis, potential causes, and treatment. For more information click here.
Brainfacts.org was founded by the Society for Neuroscience, the Kavli Foundation, and the Gatsby Charitable Foundation to make information about the brain more accessible to the public. Among the many incredible online resources that are available through this website, is an overview of over 400 disorders of the brain, including PD and Lewy Body Dementia
National Institute for Health and Care Excellence (NICE)
The NICE is a public body in the UK that provides national guidance on health and social care. NICE advice, which helps patients and their families to make decisions about their care and also provides standards to improve national healthcare, can be can be found here.